Haemoglobinopathies and newborn haemoglobinopathy screening in Germany.

Haemoglobinopathies and newborn haemoglobinopathy screening in Germany.

Beschreibung

vor 15 Jahren
Germany has been an immigration country since the early 1950s. In
December 2007, 6.7 million non-German citizens lived in the
country. However, the total number of citizens with a migration
background is 15–20 million, about 9 million of whom come from
countries where sickle cell disease and thalassaemias are frequent.
In a country with 82 million inhabitants health authorities are not
worried by the presence of probably 1000–1500 sickle cell and 450
transfusion-dependent thalassaemia patients, and therefore no
screening or preventive measures have been taken so far on a
national scale. There are plans for a pilot project (1 year) to
screen all newborns for sickle cell disease in obstetric hospitals
in 4–5 cities with more than 20% migrants. Funding and lack of an
infrastructure to provide counselling are major problems.

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