
Podcaster
Episoden

15.07.2024
16 Minuten
Listen to Dr. Sam Mackenzie talk about what is happening now
behind the scenes and the progress being made with TANGO2
deficiency disorder.
About the TANGO2 Research Foundation: Our mission is to lead the
way in finding a cure for TANGO2 de...

15.07.2024
28 Minuten
Between Hope and Fear: Facing a Potential Diagnosis with
a New Pregnancy
Meet Jake's parents and Erling's dad. Both Jake and Erling live
with TANGO2 deficiency disorder (TDD). In anticipating another
pregnancy, how did they cope with the fe...

15.07.2024
15 Minuten
John was diagnosed with TANGO2 deficiency disorder when he was a
teen. His dad, Cesar joins us to answer questions and share with
us what it's like to be a caregiver for teen.
About the TANGO2 Research Foundation: Our mission is to lead the...

15.07.2024
41 Minuten
A doctor's Heartfelt Recollection of Heartbreak to Hope.
An interview with TANGO2 Research Foundation’s Co-Founder Kasha
Morris and Dr. Cheyenne Beach’s experience with TANGO2. They
discuss Dr. Beach’s experience with the Morris Family, and w...

11.07.2024
29 Minuten
Amanda Hull is from Suffolk in England. She and husband, Daniel,
have three boys; Joe, Sebby and Walter. Sebby is a 13-year-old
diagnosed with TANGO2 Deficiency Disorder. Amanda has worked as
an Educational Psychologist for the past 18 years, a...
Über diesen Podcast
Rare Care Chronicles is a podcast series by the TANGO2 Research
Foundation covering many topics including rare disease care,
research, and experiences.
Abonnenten

Filderstadt
"Igniting Hope Through Research"
"Rare Care Chronicles"
Kommentare (0)